Thousands of children in the United States are born every year birth defects. Some more common and some extremely rare. Finding help for these families is very hard. There are plently of organizations and charities out there for children with cancer, cerebral palsy, leukimia, and and other illnesses. I have been in a search for over 7 months now for help, with no luck. My son has many different and extremely rare birth defects. Finding help has been impossible. Even with Health & Human services, United Way, March of Dimes and countless other charities, there has been no response and no help. I am starting to wonder where all the donation money really goes. What really makes it impossible is the ridiculous guidelines that you must fall into to recieve any help. Charities and other organizations have one guideline for everyone. Things need to be done on an individual basis. They need to evaluate the situation, the circumstances and what the people really need. There are lots of families out there really in need of help. Why isn't America taking care of its sick and poor? Who are these charities really helping anyway? We are not welfare cases. We are real people, who work, that are in a situation we can't get out of and one that we were not prepared for. No one ever thinks this will happen to them or their children. But if or when it does, best of luck finding help.

I am a 26 year old mother of two. I have a 20 month old daughter, Savannah, and a 7 month old son, Logan. Logan was born with many different, very rare birth defects. He has missing, fused, and deformed vertebrate in his spine, missing ribs, tethered spinal cord, and he was born with a congenital heart defect known as Tetralogy of Fallot w/ pulomonary artresia. At two weeks of age Logan underwent heart surgery at Boston Children's Hospital. December 13, 2007 he underwent surgery for a G-tube, a device that goes directly into his stomach so he can feed. Because of Logan missing ribs, his lungs are very small. Too small to support his body. Logan is ventilator dependant. January 16, 2008 he underwent surgery for a tracheostomy. A surgery, because of Logan's anatomy, Boston Children's Hospital said could not be done. His whole life so far is nothing short of a miracle. Our baby boy is 7 months old and has never been home a day in his life. Now that he has had the tracheostomy this makes it possible for him to come home. The problem.......we live in a small in-law apartment. In order for Logan to come home we need the space for him and all of his equipment (ventilator, oxygen tank, suctioning equipment, medicines, and a special hospital crib). There is a garage bay directly next to our apartment that is not being used. We would like to expand our apartment into the garage. When Logan comes home he will need a pleasant, open enviroment that will be easily accessible. He needs an enviroment with a central location where he will be around everyone. He needs an enviroment where he can thrive. We do not know where to go or who to ask for help. My children's father works full-time and I stay at home, care for our daughter and when I'm not doing that I'm at the hospital learning to care for Logan. We need financial help. NH Health & Human services has been more of a burden then a help and I have searched every charity and organization out there, with no luck. My resources are exhausted. We can't bring our baby home unless we have adequate space for him. We were unaware of Logan's condition until he was born. We were not prepared. We didn't think this could happen to us. So anyone reading this, please, if you have any help, ideas or resources for us let us know. Any help is appreciated. I urge you to check out the website I made for Logan. www.loganberthiaume.mysite.com

I am a 26 year old mother of two. I live in Westmoreland, NH. I have been a NH resident my whole life. I enjoy gardening (that's what we do for a living), reading, hanging out, the outdoors, camping, hiking, fishing, my animals, and most importantly, my children.